Intimacy & Prostate Cancer, More intimacy solutions for prostate treatment-related impotence, Us TOO teleconference held October 30, 2007, featuring Lawrence S. Hakim, MD
Intimacy & Prostate Cancer, Solutions for reclaiming or redefining the intimate relationship as a result of prostate treatment-related impotence, Us TOO teleconference held February 13, 2007, featuring Arnold Bullock, MD
Prostate Cancer Care: Past, Present and Future - Featuring Tom Kirk, Us TOO President & CEO, Jim Kiefert, EdD, Us TOO Board Chairman, Maureen Kiefert, caregiver advocate, and James McKiernan, MD. This was an Us TOO / HealthTalk live broadcast and teleconference held September 22, 2005.
American Society of Clinical Oncology (ASCO)
The world’s leading professional organization representing physicians who treat people with cancer, ASCO is committed to advancing the education of oncologists and other oncology professionals, to advocating for policies that provide access to high-quality cancer care, and to supporting the clinical trials system and the need for increased clinical and translational research. Referrals to a medical oncologist in your area are available from ASCO on Cancer.Net/Finding a New Doctor page
American Urological Association (AUA)
The premier professional association of physicians specializing in the advancement of urologic patient care, providing a wide range of services—including publications, research, the Annual Meeting, continuing medical education (CME) and the formulation of health policy. Referrals to a urologist in your area are available from AUA on UrologyHealth.org
Physician-to-Patient (P2P) - this Prostate Pointers moderated mailing list provides the opportunity to read focused discussion about clinical problems with prostate cancer. Patients post questions with accompanying medical history and specialists in the field of prostate cancer offer ideas to discuss with your physician
Cancer Legal Resource Center (CLRC) - The CLRC provides free and confidential information and resources on cancer-related legal issues to cancer survivors, caregivers, employers, health care professionals, and others coping with cancer
Mercy Medical Airlift National Patient Travel Center
Partners with Angel Flight to Cancer Patients to provide charitable (free) airline tickets for cancer patients and their escorts going to or from distant specialized evaluation, diagnosis or treatment facilities
Needy Meds - a 501-c-3 non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and costs related to health care. Provides free access to online databases such as Patient Assistance Programs, Disease-Based Assistance, Free and Low- Clinics, government programs and other types of assistance programs. Also has resources for Patient Advocates.
Tips and suggestions from an Us TOO Inspire community member, Feb 2011:
Do not be intimidated to ask for a discount even if none was offered up front. Ask and then ask again if that is the best they can do. Ask for the billing manager.
Explain your total financial situation. Even if your bill with them is small if you are facing large total bills they sometimes have "catastrophic financial" discounts the billing manager can offer.
Knowledge is power. If you can find out or estimate what medicare/medicaid is reimbursing for the procedure that is a great starting point. Tell them you are paying out of your own pocket and so why should you pay more than a medicare patient would. I told them my starting point was the medicare reimbursement amount but that I was willing to pay 2x that to be "fair". they often jumped at that...even though it was still less than half the original bill.
Doctors are often happy to be paid anything at all and they prefer to be paid sooner than later. So if all else fails you can tell them that unless you can decrease the amount you will have to pay them $10 per month for the rest of your life. They often would prefer to get less and get it NOW than to get more and have to wait and chase the money down later.
More Resource Listings
Cancer.net Financial Resources - a comprehensive overview for patients on managing the cost of cancer care and many helpful resources, from the American Society for Clinical Oncology (ASCO)
Livestrong - Financial & Government Assistance Programs
National Cancer Institute (NCI) - Financial, Insurance, and Legal Information
Good information on government-sponsored and other national organizations that offer financial aid for cancer-related expenses, including treatment, co-pays, travel, lodging, etc.
Provides planners to cancer centers in all 50 states to give free to their patients and caregivers in need. Planners include essential organizational tools and important resources designed to empower patients and caregivers to take control over their diagnosis.
A comprehensive listing of credible websites for those whose lives are touched by cancer
Provides online and telephone patient education
Cancer Legal Resource Center (CLRC)
The CLRC provides free and confidential information and resources on cancer-related legal issues to cancer survivors, caregivers, employers, health care professionals, and others coping with cancer.
The Cancer Project
The Cancer Project promotes cancer prevention and survival through a better understanding of cancer causes, particularly the link between nutrition and cancer.
Cancer Support Community
Uniting The Wellness Community and Gilda’s Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer
Center for Intimacy after Cancer Therapy (C-I-ACT)
Helping couples renew their intimacy after cancer therapy. Ralph and Barbara Alterowitz are AASECT Certified Sex Counselors, and wrote the book "Intimacy with Impotence - The Couple's Guide to Better Sex after Prostate Disease", featured in the Us TOO Circles of Love care kit for companions and family members of men with prostate cancer.
Conquer Prostate Cancer: How Medicine, Faith, Love and Sex Can Renew Your Life
Rabbi Ed Weinsberg, a prostate cancer survivor, patient healthcare and intimacy educator, author, and participant in several Us TOO forums, offers free teleseminars in support of prostate cancer patients, survivors and their wives or partners: “Enhancing Sexual Intimacy After Prostate Cancer" and "How Family, Friends and Support Groups Can Help You Get Through Prostate Cancer Treatment and Side Effects."
Fans for the Cure - Ed Randall’s Fans for the Cure is dedicated to the twin propositions of spreading the gospel of prostate cancer awareness and education. Founded by prostate cancer survivor and sports broadcaster, Ed Randall.
HealthEcho.com - Directory of Health
Large health and medicine web directory for both humans and animals, linking to more than 30,000 health-related organizations
Provides one-on-one cancer support, connecting cancer fighters, survivors and caregivers.
International Union Against Cancer
As the world's largest independent, non-profit, non-governmental association of cancer-fighting organisations, UICC brings together a wide range of international organisations, including voluntary cancer societies, research and treatment centres, public health authorities, patient support networks and advocacy groups. UICC disseminates knowledge and fosters best practices on a global scale. With over 270 member organisations in more than 80 countries, UICC is a resource for action and a voice for change.
A website dedicated to men's health and cancer, prostate cancer, testicular cancer and male breast cancer treatment and support
Men's Health Network (MHN)
A national non-profit organization whose mission is to reach men and their families where they live, work, play, and pray with health prevention messages and tools, screening programs, educational materials, advocacy opportunities, and patient navigation.
National Association For Continence (NAFC)
A national, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence; a leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.
National Cancer Institute (www.cancer.gov)
Offers comprehensive information about coping with cancer, cancer causes and prevention, screening and diagnosis, treatment and survivorship; clinical trials; statistics; and more
National Coalition for Cancer Survivorship
This national, patient-led advocacy organization works on behalf of people with all types of cancer. Through its educational programs, publications and public policy expertise, NCCS is strengthening the cancer survivorship movement, empowering cancer survivors, and advocating for policy issues that affect survivors' quality of life
Online community for cancer patients and their support network offering free health tracking tools and personalized resources to improve their care and quality of life during treatment.
The University of Pennsylvania Cancer Center Resource
Patient Advocate Foundation
A national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination, and or debt crisis matters relative to their diagnosis through case managers and attorneys
People Living with Cancer
The award winning patient website from the American Society of Clinical Oncology that provides accurate, comprehensive, oncologist-approved information to help people make informed health care decisions
Pints For Prostates
A grassroots campaign that uses the universal language of beer to reach men with an important health message, with appearances at beer festivals, social networking and pro bono advertising.
A comprehensive resource for information about the prostate, diseases of the prostate, and the available treatments
Prostate Cancer Roundtable
a group of 12 independent, patient-centric, not-for-profit organizations that cooperate to foster the development and implementation of a national policy agenda supporting high quality prostate cancer research, the prevention and early detection of clinically significant prostate cancer, the appropriate care and effective treatment of men with prostate cancer, and the appropriate education of all men at risk for this disease. Us TOO is a charter member of this group.
The Prostate Net
provides understandable and accurate cancer-related information in areas with significant minority populations
The Simon Foundation for Continence
A non-profit 501-c-3 organization dedicated to bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care.
World Wide Prostate Cancer Coalition (WWPCC)
The WWPCC is a confederation of patient and professional organizations from around the world that will seek to share information, ideas, visions and dreams to minimize the impact of prostate diseases, especially prostate cancer, in the global community.
Non-profit, 501-c-3, national cancer awareness basketball tournaments and health fairs, plus National Physician & Family Referral Project (NPFR), which develops seminars, lecture series and coalitions of African American leaders for various diseases.
Prostate Action Network is a tool box, provided by Ralph Valle, for prostate cancer activists. The press releases, speeches, fact sheets and other material here are intended to be adapted by prostate cancer patients and their families and friends to stimulate increased awareness, more funding and improved treatment options
End of Life Issues
Call-to-action campaign dedicated to improving end-of-life care through sharing of ideas and solutions by professional care givers, institutions and individuals. The Last Acts web site includes news updates, a resource center and reports on palliative care, family needs, service providers, education and training, and financing and the workplace
The Cancer Chronicles are now on-line which includes news and commentary by Ralph W. Moss, PhD, founding editor of this publication. The Cancer Chronicles constitute a comprehensive archive of information about non-toxic cancer treatments