Advanced Disease  
 
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Advanced Prostate Cancer Resource Kit

UsTOO International Prostate Cancer
Education & Support Network is Here for You

If you're looking for valuable knowledge and perspective to help you manage your advancing prostate cancer, the information in this kit will be of great interest to you. Available online or in print, it's one of the many resources from Us TOO that will help you ask the right questions, evaluate your options, and make choices that are best for you and your family. You can also attend a local support group meeting, access our web site and online discussion communities, read our monthly HotSheet and  Chapter NEWS newsletters, or call us to request whatever assistance you need.


Advancing Disease

This kit was created to address the increasing number of requests for information specific to advancing disease. Most men with advancing disease have been managing their prostate cancer for some time and are familiar with the basic information surrounding the disease including anatomy, initial treatment options, and side effects from those treatments. Therefore, the material in this kit is focused on providing you with accurate, unbiased information that’s most relevant and most useful to help you make the best decisions for effectively managing your advancing prostate cancer.

Advanced Prostate Cancer Disease Resource Kit - 4 page summary

This kit includes the following material, which is specific to advancing prostate cancer:

Principles for Managing Advanced Prostate Cancer
All of the content for each brochure shown below can be accessed by clicking on the picture of the brochure:
Additional Advanced Disease Materials

A
The
Prostate
Cancer
Playbook
B
What Now?
Hope and Options When Experiencing a Rising PSA, a Recurrence of Prostate Cancer or When Prostate Cancer is Not Responding to Treatment
C
Signposts – Understanding Diagnostic Tests and Procedures to Monitor Prostate Cancer
D
Prostate Cancer Patient’s Guide
to
Hormone
Therapy
E
Bone Health
in Focus
F
What You
Need to Know
for Better
Bone Health
G
Hope,
Recovery,
Support
After Prostate
Cancer Surgery
H
In Control –
The Facts
About Male
Urinary
Incontinence
I
Us TOO
HotSheet –

Burning Issues
Supplement


Prostate
Cancer and
Incontinence
J
What You
Need to Know About
Your Partner’s
Prostate
Cancer
K
Us TOO
HotSheet –

Monthly
Newsletters
L
Living
With
Prostate
Cancer


(Hard copy only)
In addition to the 7 Principles of Empowerment found
in the Principles for Managing Advanced Prostate Cancer,
more information about each principle can be found on the Us TOO web site and in the
Additional Advanced Disease Materials (Brochures A – L as pictured above)
with content on specific pages of each brochure as noted below.


PRINCIPLES FOR MANAGING ADVANCED PROSTATE CANCER ADDITIONAL ADVANCED DISEASE MATERIALS
Principle #1 Chart Your Disease Data p. 10
Principle #2 Assess Your Disease State p. 13
Principle #3 Identify Your Treatment Options p. 15
Questions To Ask Your Doctor p. 17
Principle #4 Develop and Reassess Your Treatment p. 20
Hormone Management p. 20
Radiation, Immunotherapy And Chemotherapy p. 23
Consider Clinical Trials p. 27
Principle #5 Anticipate Side Effects and Know How to Manage Them p. 28
Maintain Bone Health p. 28
Minimize Pain p. 29
Manage Incontinence p. 30
Maintain Intimacy p. 31
Principle #6 Recognize the Eventual Need for an End-of-Life Plan p. 32
Principle #7 Empower Yourself Daily through Diet, Exercise, Spirituality, and Humor p. 34
A. The Prostate Cancer Playbook
B. What Now?
pp. 11, 34, 35
pp. 38, 39
B. What Now?
C. Signposts
L. LivingWith Prostate Cancer*
pp. 7-9
Throughout
pp. 8, 9
A. The Prostate Cancer Playbook
J. What You Need to Know About
Your Partner’s Prostate Cancer
L. Living With Prostate Cancer*

p. 14
p. 5

p. 3

A. The Prostate Cancer Playbook
B. What Now?
pp. 24-32
p. 3
A. The Prostate Cancer Playbook
B. What Now?
L. Living With Prostate Cancer*
K. Us TOO HotSheet Monthly Newsletter
p. 15
pp. 4, 5
p. 3
Ongoing
D. Guide to Hormone Therapy
B. What Now?
L. Living With Prostate Cancer*
pp. 15-21
p. 14
Throughout
A. The Prostate Cancer Playbook
B. What Now?
L. Living With Prostate Cancer*
p. 15
pp. 12, 22
pp. 12, 13
A. The Prostate Cancer Playbook
B. What Now?
p. 17
p. 26
K. Us TOO HotSheet Monthly Newsletter Ongoing
E. Bone Health in Focus
F. What You Need to Know
for Better Bone Health
B. What Now?
A. The Prostate Cancer Playbook
Throughout
Throughout

p. 32
p. 23
A. The Prostate Cancer Playbook
B. What Now?
p. 13
p. 25
H. In Control
I. HotSheet - Burning Issues Supplement
G. Hope, Recovery, Support
Throughout
Throughout

pp. 13-19, 34
G. Hope, Recovery, Support pp. 23-30, 36
A. The Prostate Cancer Playbook p. 38
A. The Prostate Cancer Playbook
B. What Now?
pp. 18, 22
pp. 29, 31, 33

* Hard copy only

Chart Your Disease Data
 
Assess Your Disease State
 
DEVELOP AND REASSESS YOUR TREATMENT PLAN
 
ANTICIPATE SIDE EFFECTS AND KNOW HOW TO MANAGE THEM
 
RECOGNIZE THE EVENTUAL NEED FOR AN END-OF-LIFE PLAN
 
EMPOWER YOURSELF DAILY THROUGH DIET, EXERCISE, SPIRITUALITY AND HUMOR
 
ADVOCACY AND AWARENESS OPPORTUNITIES
 
PROSTATE CANCER NON-PROFITS
 
ACKNOWLEDGEMENTS
Us TOO International Education & Support Network would like to recognize the following team of people who created this guide:
Pam Barrett
Fred Gersh
Russ Gould
Shirley Grey, RN, MSN
Jerry Hardy
Jim Kiefert, EdD
Thomas Kirk
Kay Lowmaster, MSW, LCSW
Fred Mills
Charles “Snuffy” Myers, MD
Charlie Sauer
Paul F. Schellhammer, MD
Kathy Scortino, RN, MA, LCPC
Chuck Strand
 
DISCLAIMER
The medical information and procedures contained in this guide are not intended as medical advice, nor are they intended as a substitute for consulting with a physician or health care provider. All matters pertaining to your health should be supervised by a health care professional. This material is intended to be used only for educational purposes. It is not a substitute for informed medical advice from a physician.
 
 

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